(Not too proud to beg, an email was posted to one of the autism lists I read as follows[AutismCommunityDemocrats]: Call Barack Obama a.s.a.p. and ask him to read "Changing the Course of Autism" by Dr. Bryan Jepson. Ask him to make sure the AAP changes their standards of care for children with ASD to include diagnostic tests for metabolic disorders, GI disorders, food allergies, persistent viruses, and environmental toxins including heavy metals. Then call again on the following Monday. He has no clue what to do unless we demand that he becomes informed by the DAN community. If we don't act, he will be informed by the AAP, big pharma, and insurance companies. Please join me in this. I beg you. And pass this along to all of your friends and relatives who would be willing to help.)
Can you help?My Letter to Obama sent Sunday, November 16th, 2008:
Dear Sir,
I am the mother of two children who were both diagnosed with autism spectrum disorders (my older son quite severe, his prognosis was "unknown"). Both my children are now nearly recovered. Please contact us, if you'd like to meet them, they are 9 and 6, and they are the light and focus of our lives. They are bright, verbose, aware, creative little beings and it took every last thing we had to help them become that way.
I have worked hard for the last 5-1/2 years using alternative treatments to help my children recover from their illness. I have also discovered that *I* am one of the 1 in 6 women the CDC says had a toxic level of mercury retained in her body when she became pregnant.
Ask any medical professional, any school nurse, any long-time teacher and they will tell you that the newest generations of our country's children are sicker than any previous generations, and that there is more "medicine" being distributed to children every day.
There is something wrong here! 1 in 150 children nationwide are now diagnosed with autism like mine were. Both my children have escaped their diagnosis by us paying out of pocket to alternative health practitioners (Defeat Autism Now! or DAN! doctors and Naturopathic Doctors) in order to recover my children. It has worked. We need to make this the standard.
Please, President-Elect Obama, read "Changing the Course of Autism" by Dr. Bryan Jepson. Please take a real look at what thousands upon thousands of parents are saying. Please make the AAP change their standards of care for children with ASD to include diagnostic tests for metabolic disorders, GI disorders, food allergies, persistent viruses, and environmental toxins including heavy metals. If I had known that because of the toxin level in my body at the time of my pregnancies that *I* had a metabolic disorder, my children might never have developed autism, because I could have addressed the disorder first to ensure their safety.
Mr. Obama, please, you must learn from the actual Autism Community, from those who successfully treat autism, from DAN! doctors, from parents of children with autism. Please, you must not be insular to this issue or it will get no better, and we'll continue to lose whole generations of boys (and some girls). Our children *are* the proverbial canaries in the coal mines.
If we do not speak up, the AAP, the CDC, the NIH, the PHRMAs, the insurance companies and the IOM will be the primary sources for information on autism, and the thousands, potentially, millions of us living with autism will have no voice, because we are being deliberately ridiculed, silenced, disenfranchised and criticized. But we are right. And these government-allied large powerful organizations out-speak and out-spend us in relation to the government as it now stands. No one will even listen to us. They've got highly paid lobbyists and lawyers. We've got sick children and are spending every waking moment trying to recover them, and we have...? No lobbyists, no lawyers, just a few brave doctors, scientists and an ever-growing community of parents. Please, listen to us?
Please, Mr. Obama, I BEG you. Listen to us. Look at our evidence. Listen to *our* stories. Then decide. I intend to contact you by phone as often as possible, and I will continue to write and encourage my friends and relations to write to you about this ever so important issue.
Autism isn't going away, not as it currently stands. We have been fortunate, blessed in fact, to recover our children. The most needy children are usually in homes that are unable to cover these alternative expenses. We are not wealthy, but every cent we have goes into my children's and now my treatment and recovery from the toxicity that has plagued us our whole lives. For the hardest years there, it was a banner day when I could buy myself a pair of socks.
Please. Please. Please help us... Listen to us.
A former primary delegate for Obama in Clark County, Washington State,
Miriam A. Mason